What is SSBTR?

Monday, October 15, 2012
By, Roxie Goldberg
SSBTR (Students Supporting Brain Tumor Research) was founded in 2002 after the devastating deaths from brain tumors of three Arizona high school students. When research pointed out that other than leukemia, brain tumors are the number one cancer killer in teenagers, a decision was made to do something about it. Students Supporting Brain Tumor Research was the brainchild of teacher, Steve Glassman. He saw the organization as one being run by students. Not only a cause to fight the number one killer of children through high school age, but also to give students the opportunity to become community leaders and philanthropists.

During the organization’s first year, $7000 was raised, and a walk-a-thon at the local high school attracted three hundred participants. The money raised was donated to various brain tumor research laboratories, including Barrows Neurological Institute, the Translational Genomic Research Institute, and Phoenix Children’s Hospital. The first year had been a success. Little did the student volunteers know, that just nine years later, they would have raised over one million dollars.

Over the next few years, the organization grew to incredible heights. More students signed on to volunteer, more corporations were becoming aware of SSBTR’s missionand making charitable donations, and more people were becoming educated on the topic of brain tumors, their high fatality rates, and the need to find a cure. The non-profit began to focus its efforts on not only raising funds and awareness for brain tumor research year-round, but also on the coordination and execution of an annual walk-a-thon.

During 2010, SSBTR saw much growth. As the 9th annual walk-a-thon took place at Arizona State University, University of Arizona organized it’s 2nd annual walk-a-thon, and brain tumor survivor, Johanna Klomann founded the Northern Arizona University’s first SSBTR event. In total, SSBTR raised $213,000 during it’s 2010 walk season (May 2009- April 2010), all of which was distributed between Barrow Neurological Institute, TGen, The National Brain Tumor Society, and Phoenix Children’s Hospital.SSBTR funds have supported some incredible projects this past year. SSBTR Fellow Katie Fenton from Barrow Neurological Institute has made a breakthrough in ketogenic diets, a high-fat, low-carbohydrate treatment for medically refractory epilepsy, as an alternative strategy to inhibit tumor growth. Animal studies have suggested that this diet significantly extends survival in brain tumor patients.

SSBTR is looking forward to it’s 10th Annual Walk-A-Thon on February 26, 2011 at Saguaro High School in Scottsdale, Arizona. With an expected 5,000 participants, SSBTR is thrilled to announce a day filled with plenty of entertainment and excitement! Headlining the stage at the opening ceremony will be the Phoenix Suns Dancers and Gorilla, followed by entertainment from bands, Apexx and Billion Dollar Bailout. Activities such as face painting and bounce houses provide entertainment for kids of all ages. Walkers who wish to take a break from the track will be able to head over to the silent auction tables throughout the day to bid on their favorite sports memorabilia, restaurant gift cards, spa getaways, rounds of golf, and a number of other items.

For more information about SSBTR, or to make a donation, please visit ssbtr.org or e-mail us at admin@ssbtr.org

Roxie Goldberg
SSBTR Co-Chair

  • Ashok

    I have had brain I have had brain cancer since the age 7-8 . Pilocytic-astrocytoma ..had oetiapron is adult but they could not get it all ..I will be 48 this month No chemo .No radition .cannabis raw foods mushrooms seeds .grape apple aprecot ..all have vitB17 .stay away from sugar milk ..food with hormones ..& never let a Doctor tell you how long you have to live ..

  • https://www.facebook.com/pages/Tumors-Suck/145877928814836
  •