Adolescent and Young Adult Cancer

Monday, October 15, 2012
By, Mass Kickers

YOUNG ADULT CANCER FACTS

  1. Cancer incidence in young adults has doubled over the past 20 years
  2. 70,000 people ages 15-39 are diagnosed with cancer each year1
  3. In the past 20 years, there has been little to no improvement in the survival rates of young adults while significant improvements have been made in the survival rates in the pediatric and geriatric population

There are many reasons there has been no improvement in young adult survival rates:

  • Doctors don’t take young adult patients seriously because they are not in the typical demographic for cancer, brain tumors, or some other life threatening disease leading to delayed diagnosis.
  • Lack of research1 – Young adult patients often are not eligible for studies (too old for pediatric studies or to young for traditional studies) and there are few studies geared towards the 15-39 age group.
  • Entry level jobs with poor healthcare – young people are just starting out so the costs of healthcare are not a priority1Early detection/education about warning signs is essential.
  • “Superman” complex – Belief that nothing could ever happen to a young adult patient. They think they are invincible! Early detection/education about warning signs is essential.

These were the people I turned to for support. Please spread the word.

Thanks,
Eric Anthony Galvez DPT CSCS

Reference

1.  Cancer’s Orphan Generation – U.S. News and World Report, 1/15/07

Online Resources
I’m Too Young For This
A hip site for adolescents and young adult patients with cancer/tumors.  The premier site for adolesent and young adult survivor resources.

Planet Cancer 
A cool site for adolescents and young adult patients with cancer/tumors. Has the only “social networking” platform for young survivors.  There is nothing like it geared towards adolescents and young adults.

SeventyK:   Sign The Young Adult Cancer Patient Bill of Rights.  Preserve Our Potential!

KAYAC :  Kids, Adolescents, and Young Adults Cancer Research Program at UC Irvine.   One of the first research programs to address the neglected young adult population.

Vital Options
One of the first organizations to support young adults with cancer.

The LiveStrong Young Adult Alliance – A branch of the uber popular LiveStrong Organization

The Ulman Fund 
Founded by cancer survivor Doug Ulman this fund is dedicated to supporting young adults with cancer.

Young Adults Surviving glioblastoma
A site dedicated to supporting young adults whose lives have been affected by glioblastoma brain tumors.

National Brain Tumor Foundation Young Adult Support Group
If you have/had a brain tumor and are between 18-35 years old, then this is a must see page for you!

Tamika and Friends
Cervical cancer is one of the few women’s cancers that can be prevented

Imerman’s Angels – Need someone to talk to who knows what you’re going through?  They’ll set you up.

Carpe Testes –  A funny but educational site dedicated to testicular cancer.

Adolescent and Young Adult snapshot from the National Cancer Institute
Young Adult mAss Kickers
Matthew Zachary: The “Jay-Z” of Young Adult Survivorship.

Liz Holzemer: an inspirational meningioma survivor, mother of 2, and active brain tumor advocate. She founded Meningioma Mommas and is author of “Curveball”.

Tumorland: A great blog for brain tumor information. This blog has a lot of information about chemotherapy and other types of brain tumor research.

Audra Coldiron: A young mom and a brain tumor survivor

The Journal of a Prizefighter: A young man’s fight against Hodgkin’s disease

Wonky-eye: A young wife’s perspective on her young husband’s brain tumor

Kris Carr: A cool gal who knows a lot about mAss Kicking the natural way.

Michael Tiernan: A testicular cancer survivor and immensely talented guy!

Erin Zammett Ruddy: Glamour editor and leukemia patient. Her blog’s all about living with cancer—the ups, the downs, the craziness of it all.

Duane Baily-Castro :  The “Renaissance”  Hodgkins lymphoma mAss Kicker.  His blog contains many useful resources.

Christine Pechara :  An extremely rescourceful non-Hodgkins lymphoma mAss Kicker

Maimah Karmo :  A very charismatic breast cancer mAss Kicker.  An author, activist, and Empowerment Expert

Eric Galvez :  He is a physical therapist that became a patient.  He is now evolving and re-creating himself

 

Medical Disclaimer
This website is designed to provide additional information to patients and their loved ones when faced with intimidating diagnoses. A physician or medical professional should be consulted before making any health related decisions. We serve as a portal for information so that an informed and efficient decision can be concluded by all parties involved.  The creators of this site are not responsible or liable, directly or indirectly, for any form of damages whatsoever resulting from the use (or misuse) of information contained in or implied by the content of this website. The purpose of the mAss Kickers is to empower people with knowledge, not to specifically advise people how to address each unique situation.

  • Emily

    One or two to remmeber, that is.

  • https://www.facebook.com/pages/Tumors-Suck/145877928814836
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